Right from the start a distinct theme emerged, which focused on preparing for death.
“I would like to know the day and hour of my death,’ said one participant. ‘I like being in control, and knowing this would mean that I could prepare myself.’
‘Yes,’ said someone else, ‘I realise I have a lot of clearing to do. I have far too much stuff. I don’t want to leave a mess behind for my family to cope with. It’s not fair on them. I really need to get on with it.’
We were all in agreement about the importance of clearing out what we no longer need. One participant, who had cared for her terminal ill sister in the last weeks of her life, told us of how her sister prepared for death. ‘She wanted to deal with anything that she felt was stopping her from being at peace. Having terminal cancer really focused her mind, and it was if she ticked things off as she planned how she was going to die. She knew her husband and daughter were trying to ignore what was going on, so she was determined to do it herself.’